Monthly Archives: May 2018

A Tenacious and Unstoppable Advocate for ALS

By |2019-10-31T12:20:58+00:00May 21st, 2018|

Diane Winokur is a true champion. Even in her mid-80’s, she not only speaks with confidence about her hope for the future of ALS, but she is continuing her advocacy for this disease with relentless strength. I mean, how many 80 year olds do you know who can courageously pour a bucket of ice on

How the California Stem Cell Program is Fighting Your Incurable Disease!

By |2018-05-23T18:06:12+00:00May 18th, 2018|

Without Don Reed, the stem cell voice in California would not be what it is today. Don’s journey in stem cell advocacy began almost twenty years ago with California’s Roman Reed Spinal Cord Injury Research Act of 1999- an initiative named after his son who was paralyzed in a football accident. Don later served on

One Mother’s Fight Against Huntington’s Disease

By |2019-10-31T12:35:56+00:00May 17th, 2018|

The story of how Frances Saldaña became a fierce advocate for Huntington's Disease (HD) research is not one for the faint of heart. In 1989 Frances lost the father of her children, Hector Portillo, to Huntington's Disease.  Then, in one tragic misfortune after another, that same cruel disease took each of her three children, Marie, Margie

A Sunny Approach to Patient Advocacy

By |2018-05-18T17:40:07+00:00May 17th, 2018|

Monica Johnson was just a toddler when she was diagnosed with juvenile arthritis. Despite battling the disease for nearly her entire life, Monica’s sunny outlook on Arthritis has supported her staunch work as a patient advocate across the country for nearly 30 years. We spoke to Monica to learn more about her experience living with