Daily Archives: May 17, 2018

One Mother’s Fight Against Huntington’s Disease

By |2019-10-31T12:35:56+00:00May 17th, 2018|

The story of how Frances Saldaña became a fierce advocate for Huntington's Disease (HD) research is not one for the faint of heart. In 1989 Frances lost the father of her children, Hector Portillo, to Huntington's Disease.  Then, in one tragic misfortune after another, that same cruel disease took each of her three children, Marie, Margie

A Sunny Approach to Patient Advocacy

By |2018-05-18T17:40:07+00:00May 17th, 2018|

Monica Johnson was just a toddler when she was diagnosed with juvenile arthritis. Despite battling the disease for nearly her entire life, Monica’s sunny outlook on Arthritis has supported her staunch work as a patient advocate across the country for nearly 30 years. We spoke to Monica to learn more about her experience living with