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Advocacy Through Comedy: The Story Behind Hilarity for Charity

By |2021-08-04T21:52:45+00:00June 19th, 2018|

Lauren Miller Rogen may be best known for her work as a writer and an actor, but she is also a powerhouse advocate, founding the organization Hilarity for Charity. Americans for Cures recently sat down to talk with Lauren about her journey as an advocate for Alzheimer’s research and why an advocate’s voice can make

Get To Know Your Scientific Advisory Board: Dr. Leslie Thompson

By |2020-12-02T21:26:17+00:00June 6th, 2018|

Meet one of your Americans for Cures’ Scientific Advisory Board members and UC Irvine neurobiologist, Dr. Leslie Thompson. Leslie’s lab investigates the potential of stem cells to study and treat Huntington’s Disease (HD). Her list of accomplishments and publications keep growing and could fill up an entire pamphlet. Yet, with all the successes and through

How the California Stem Cell Program is Fighting Your Incurable Disease!

By |2020-12-17T02:39:30+00:00May 18th, 2018|

Without Don Reed, the stem cell voice in California would not be what it is today. Don’s journey in stem cell advocacy began almost twenty years ago with California’s Roman Reed Spinal Cord Injury Research Act of 1999- an initiative named after his son who was paralyzed in a football accident. Don later served on

One Mother’s Fight Against Huntington’s Disease

By |2020-12-02T21:26:17+00:00May 17th, 2018|

The story of how Frances Saldaña became a fierce advocate for Huntington's Disease (HD) research is not one for the faint of heart. In 1989 Frances lost the father of her children, Hector Portillo, to Huntington's Disease.  Then, in one tragic misfortune after another, that same cruel disease took each of her three children, Marie, Margie

A Sunny Approach to Patient Advocacy

By |2021-08-05T19:25:09+00:00May 17th, 2018|

Monica Johnson was just a toddler when she was diagnosed with juvenile arthritis. Despite battling the disease for nearly her entire life, Monica’s sunny outlook on Arthritis has supported her staunch work as a patient advocate across the country for nearly 30 years. We spoke to Monica to learn more about her experience living with

Champions Award Interview Bart Narter

By |2021-08-04T21:45:18+00:00April 3rd, 2018|

Meet April’s co-Champions Award recipient, Bart Narter. Bart was an avid cyclist for decades before he was diagnosed with Parkinson’s disease. We spoke to Bart to learn more about his experience of living with Parkinson’s and what motivates him to do the amazing work he’s doing. Q. Tell us about your personal story of being

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